Nov. 2012

Sunday, October 5, 2008

Therapy Complete

Two years ago in October we began Reactive Attachment Therapy with Prema. We will never forget the day. Every October the neighbor's palm tree seeds fall to ground. (We take care of their lawn while they are at home in Canada 6 months of the year.) Prema had recently been diagnosed with RAD by a LMHC (therapist), but she herself didn't know much about the disorder beyond the symptoms. Through some research and a recommendation by an acquaintance we had come to know about Nancy Thomas. We quickly ordered as much as we could from the attachment web site and began watching countless hours of video detailing the therapy we needed to begin. As soon as we finished the videos, we began the therapy with no idea what was really going to happen. We had to make huge changes to the way we were parenting Prema.

One of the changes was getting Prema to complete 30 minutes of chores a day. So on day one we began with the simple chore of picking up the palm seeds from the ground. What seemed like a small task for a 7 year old (really 9) turned out to be a 3 day stand off with Prema refusing. I remember the countless times we second guessed the situation. We had a language barrier so we marked off the area with rope to make sure she knew how much she had to pick up. We modeled the process over and over again picking up seeds, putting them in a small bucket and emptying the bucket into the trash can. We had to literally camp outside all day long until dark because she had no language to tell us when she was ready to start to work. We also had another child in the house that needed attention and Prema who couldn't be left outside alone. We kept Prema out of school until she picked them up because we were determined to win the battle. Kyle had to stay home from work so that we could share the duty of watching Isaac and Prema. We frantically were trying to find a therapist in the area that knew something about RAD and therapy techniques. It was a nightmare.

Eventually we did find a therapist. There is only on person in our entire county that does proper attachment therapy. Luckily she was able to see us quickly and we began what became a 2 year journey of therapy toward healing Prema helping her attach to us. Last week we determined that Prema should be discharged. It was a joyous and sad moment all at the same time. I remember watching those videos and hearing of how children heal from RAD. I would envision our family and Prema with healing. At that time a "healed Prema" was a completely normal child with deafness. Prema is still very far from normal. But she is very different than what she was 2 years ago. Two years ago we couldn't get her to sit in our laps without kicking and fighting. Now she accepts all of our affection and gives affection herself. Two years ago Prema would pee the bed every night and would destroy things in rage. Now she does neither. Two years ago she would refuse to do chores for days, now she only says "no" once in a while but is quick to change when her mind when we give her a disapproving look or a choice to receive a consequence.

It has been an exhausting two years. I don't think I've every experienced so many emotions about one thing: rage, embarrassment, joy, anger, frustration, hopelessness, hope, despair, excitement, etc. I have been brought out of my comfort zone so many times during this process. I have also learned a TON.

For two years we have put everything we have (time, money, and energy) in to "healing" Prema. As you spend time in the season of searching for answers and solutions its hard to ever come to a place of full acceptance. But as all of Prema's therapies are coming to an end (attachment, physical therapy, neurofeedback) it becomes time to stop hoping for some of your dreams and just accept her. As I am realizing my dream of a "normal Prema" is probably not going to be a reality, I'm learning even more than before how awful neglect really is. When you're in the midst of therapies there is hope that with hard work, love, and perseverance you can wipe away the past. But now as Prema is attached to us and comfortable in our family and America reality sets in: you can take the child out of India, but India will still be a part of her. You can take the child out of a neglectful situation but the affects of neglect will always remain. Prema is always going to be socially awkward, a slow learner, and a challenge to parent. But in the midsts of knowing these things I must accept it and find a balance of maintaining high expectations for her to always desire to achieve more. Sometimes this is a daunting task.

4 comments:

Carrie said...

Wow, Michelle. What an accomplishment. I know that the work isn't over, but I am so mightily, unspeakably impressed with all the work you guys have put into this. I pray the very richest of continued blessings on you.

djp375 said...

I remember very clearly the day you and Prema got off the plane from India. Prema was pulling and tugging and you were totally exhausted.

I stayed the first week after she came. She slept with me and I remember waking up in the middle of the night and Prema would be staring at me. You and Kyle had to start teaching her the very basics, going to the bathroom, brushing her teeth. Prema was really a baby in a much older childs body. She had to learn everything. We all thought at that time that all she needed was time and love. Boy were we wrong.

A truer statement has never been made than the one about all the emotions and sacrifices your family has made for Prema.

Life for all of you has been extremely difficult. Your lives have been centered around having Prema attach to you and meeting all her other needs. It is hard to believe that the once seeming impossible has actually happened.

But by the grace of God, Kyle, you and with the greatest help from David and Sandy, she has attached.

MICHELLE CULLUM said...

Nice post honey.
Kyle

angela said...

great post. thanks for sharing this journey with us. you guys are some of my heroes...i hope you know this!!