We got the results from Prema's x-ray. Her adenoids have grown back. In January of 2005 her medical records show that she had the removed in India while she was in care of the orphanage. Our pediatrician says that if you don't get all the tissue when you operate they can regenerate just like a lizards tail. The x-ray is showing they are present and somewhat enlarged but we won't know the real story until we visit the ENT. In the past 2.5 years for Prema:
Pediatrician - same as any kid
Neurologist- included an EEG for seizures (no seizures detected) and MRI at hospital for brain damage information (non detected)
Genetics- nothing discovered, but ruled out Fetal Alcohol Syndrome
Orthopedic- Shriner's Hospital provides Prema with orthotics for balance problems
Physical Therapy (private and school)
Attachment Therapy (LMHC)- 2 years of visits and finally done
Neurofeedback specialist - 1.5 years of sessions and soon will be done
Oral Surgeon- tooth removed in hospital
Dentist
Orthodontist- starting braces in one year
Pediatric Optometrist- no sight problems at this time
Occupational Therapy (school)
Speech/ Language (school)
X-rays several times for several things
A lot of Lab tests
Hearing Tests
Each time we go to a new specialist/ medical facility it is always very interesting. Prema is a bit of an anomaly in the medical field. The people have never had any experience with a profoundly deaf child, adopted later in life, severely neglected, and with no history until her arrival at the orphanage. We've gotten recommendations to give up and stop putting any effort into her because her brain is the size of a 14 month old baby and can't do that much to lots of encouragement to keep doing anything we can because the prognosis of her achievements is unknown. We've met some incredible people along the years who are willing to do whatever they can to help us. And thankfully we have extremely supportive family living close by to help watch the boys during or accompany us to appointments so I can focus on everything the doctors/ specialists are telling me.
I keep you updated on our ENT visit. We are scheduled for February 3rd. Hopefully this is the last specialist for a few years.
1 comment:
the best one is defintely, "don't expect much, her brain is the size of a pea" From the neurologist in Tampa, right honey? I love that. Honestly, who would say that to someone? And she pretty much said it about that bluntly. Awesome... -Kyle
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